GE Sai, LI Wenfei, WANG Qi, LI Jian, ZHANG Xiaotian, SHEN Lin. Current Status, Challenges, and Prospects of Clinical Research on Rare Tumors in China[J]. Journal of Rare Diseases, 2025, 4(4): 399-405. DOI: 10.12376/j.issn.2097-0501.2025.04.001
Citation: GE Sai, LI Wenfei, WANG Qi, LI Jian, ZHANG Xiaotian, SHEN Lin. Current Status, Challenges, and Prospects of Clinical Research on Rare Tumors in China[J]. Journal of Rare Diseases, 2025, 4(4): 399-405. DOI: 10.12376/j.issn.2097-0501.2025.04.001

Current Status, Challenges, and Prospects of Clinical Research on Rare Tumors in China

  • Although the incidence of each individual type of rare tumor is relatively low, their cumulative impact affects a vast patient population, and their survival prognosis is significantly worse than that of common tumors. In recent years, China has made remarkable progress in clinical research on rare tumors, with a rapid increase in the number of studies and a diversified exploration of treatment modalities. However, clinical research on rare tumors still faces numerous challenges, such as uneven distribution of medical resources, the absence of a foundational registration system, and insufficient motivation for original research and development. Looking ahead, key measures including specialized development, a national collaborative group model, full utilization of real-world data, application of novel clinical research designs, and artificial intelligence technologies will strongly drive comprehensive advancements in China′s rare tumor prevention and treatment system.
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